Bibliographic Information
Creator: Thyen, Ute
Contributor: Markwart, Henriette; Bomba, Franziska; Ernst, Gundula; Menrath, Ingo; Thyen, Ute; Schmidt, Silke
Funding: Federal Ministry of Education and Research (BMBF; grant number: 01 GX1005) and Federal Ministry of Health (BMG; grant number: IA5–2512FSB121//314–123006/21).
Title: Health care competence of adolescents with chronic conditions in transition: Research data from the evaluation of a patient education program.
Year of Publication: 2020
Citation: Markwart, H., Bomba, F., Ernst, G., Menrath, I., Thyen, U., & Schmidt, S. (2020). Health care competence of adolescents with chronic conditions in transition: Research data from the evaluation of a patient education program. [Translated Title] (Version 1.0.0) [Data and Documentation]. Trier: Center for Research Data in Psychology: PsychData of the Leibniz Institute for Psychology ZPID. https://doi.org/10.5160/psychdata.mthe14mo14
Abstract
Two cooperating projects ModuS-T (“Growing up with ModuS: Fit for the transition”) and Transition (“Promoting health care competence of adolescents with chronic diseases in the transition from paediatric to adult care systems”) have combined their data in this dataset. The target group were adolescents with chronic conditions aged 13-24 years (and their parents). The goal of both projects was to develop and test a chronic-generic education program to prepare adolescents for the transition. The ModuS-T project also developed modules for parents. The result was a 1.5-day workshop for young people and their parents, which was evaluated. The workshop is based on the principles of the modular training programme ModuS, that consists of disease-specific and generic modules and strengthens the empowerment of the participants. Further information on the projects and their results can be found in Ernst et al (2017), Menrath et al (2018) and Schmidt et al (2016).
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Study Description
Research Questions/Hypotheses: A 1.5-day transition workshop increases transition-oriented knowledge and competencies of adolescents with a chronic condition. Additionally, active patient participation and self-efficacy of the young people are increased. The workshop is applicable to a variety of diseases.
Research Design: Quasi-experimental Design , Mixed Design, Field Experiment; repeated measurements
Measurement Instruments/Apparatus: In a prospective controlled intervention study, the feasibility, acceptance and effectiveness of the newly developed patient education program was examined. First, all eligible patients were invited to participate in the education program at a fixed date. Those who were interested in the program and had time on the specified date were assigned to the intervention group (IG). Those who were interested in the program in principle but were unable to attend the program for various reasons were assigned to the control group (KG). At two measurement dates (immediately before (T0) and after the training (T1), 4 weeks later (ModuS) and 6 months later (Transition; T2), the participants of the IG had to fill in questionnaires. In addition, focus group interviews were conducted separately with the young people and the parents in 10 training courses. These served to supplement the quantitative data and to evaluate the workshops with the greatest possible openness. The participants of the KG filled out the questionnaire battery at two points in time (T0 and T2) at intervals of 4 weeks and 6 months respectively.
Data Collection Method:
Data collection in the presence of an experimenter
– Individual Administration
– Paper and Pencil
Data collection in the absence of an experimenter
– Mail Survey
Population: Adolescents with chronic condition aged 13-24 years
Survey Time Period:
T0: Baseline before intervention
T1: Immediately after intervention (intervention group only)
T2: 1 or 6 month after intervention
Sample: Convenience sample
Gender Distribution:
50,9% female subjects
49,1% male subjects
Age Distribution: 13-24 years
Spatial Coverage (Country/Region/City): Germany
Subject Recruitment: Adolescents with chronic condition were contacted via participating special clinics. Participants of the intervention (Project Transition) received a 20-Euro Amazon-voucher.
Sample Size: 723 individuals
Return/DropOut: 323 participants did not fill in the General Self-efficacy Scale as it was only applicated in the project “Transition”
Literature
Publications Directly Related to the Dataset
| Publications Directly Related to the Dataset |
|---|
| Markwart, H., Bomba, F., Menrath, I., Brenk-Franz, K., Ernst, G., Thyen, U., Hildebrandt, A. & Schmidt, S. (submitted). Assessing empowerment as multidimensional outcome of a patient education program for adolescents with chronic conditions: A Latent Difference Score Model. PLOS ONE. |
Utilized Test Methods
| Utilized Test Methods |
|---|
| Bomba, F., Markwart, H., Mühlan, H., Menrath, I., Ernst, G., Thyen, U., & Schmidt, S. (2018). Adaptation and validation of the German Patient Activation Measure for adolescents with chronic conditions in transitional care: PAM®13 for Adolescents. Research in Nursing & Health, 41(1), 78–87. https://doi.org/10.1002/nur.21831 |
| Herrmann-Garitz, C., Muehlan, H., Bomba, F., Thyen, U., & Schmidt, S. (2015). Konzeption und Erfassung der gesundheitsbezogenen Transitionskompetenz von Jugendlichen mit chronischen Erkrankungen [Conception and Measurement of Health-related Transition Competence for Adolescents with chronic condition]. Das Gesundheitswesen, 79(06), 491–496. https://doi.org/10.1055/s-0035-1549986 |
| Schwarzer, R., & Jerusalem, M. (1995). Generalized Self-Efficacy scale. In J. Weinman, S. Wright, & M. Johnston, Measures in health psychology: A user’s portfolio. Causal and control beliefs (pp. 35-37). Windsor, UK: NFER-NELSON |
Further Reading
| Further Reading |
|---|
| Blum, R. W. (1995). Transition to adult health care: Setting the stage. Journal of Adolescent Health, 17(1), 3–5. https://doi.org/10.1016/1054-139X(95)00073-2 |
| Blum, R. W. (2002). Improving transition for adolescents with special health care needs from pediatric to adult-centered health care, 110.2002,6,2. Crowley, R., Wolfe, I., Lock, K., & McKee, M. (2011). Improving the transition between paediatric and adult healthcare: A systematic review. Archives of Disease in Childhood, 96(6), 548–553. https://doi.org/10.1136/adc.2010.202473 |
| Ernst, G., Menrath, I., Lange, K., Eisermann, N., Staab, D., Thyen, U., & Szczepanski, R. (2017). Development and evaluation of a generic education program for chronic diseases in childhood. Patient Education and Counseling, 100(6), 1153–1160. https://doi.org/10.1016/j.pec.2017.01.001 |
| Kennedy, A., Sloman, F., Douglass, J. A., & Sawyer, S. M. (2007). Young people with chronic illness: the approach to transition. Internal Medicine Journal, 37(8), 555–560. https://doi.org/10.1111/j.1445-5994.2007.01440.x |
| Menrath, I., Ernst, G., Szczepanski, R., Lange, K., Bomba, F., Staab, D., Muehlan, H. & Thyen, U. (2018). Effectiveness of a generic transition-oriented patient education program in a multicenter, prospective and controlled study. Journal of Transition Medicine, 0(0). https://doi.org/10.1515/jtm-2018-0001 |
| Schmidt, S., Herrmann-Garitz, C., Bomba, F., & Thyen, U. (2016). A multicenter prospective quasi-experimental study on the impact of a transition-oriented generic patient education program on health service participation and quality of life in adolescents and young adults. Patient Education and Counseling, 99(3), 421–428. https://doi.org/10.1016/j.pec.2015.10.024 |